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Living with Interstitial Cystitis

This section is a place to share stories about Living with Interstitial Cystitis

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

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May 2008

  • marriage and IC - by jennifer - (Thu, May 22 2008)
    I am 24 years old and was diagnosed with IC at the age of 19 (although I have had problems with bladder pain for as far back as my mremory reaches, at least as young as six) [more..]
  • IC Ruined My Life in Less Than 2 Years - by Stacey - (Tue, May 20 2008)
    Reading these stories I have tears running down my face because I have been through so much like all of these poor people. I went through every “rule out” test known to mankind from barium enemas to cystoscopy with hydro-distension and so many drug trials I cannot tolerate them anymore. [more..]
  • Can’t let it control you - by Jennifer - (Tue, May 13 2008)
    So I wrote my story last month and I was very angry that is actually an understatement I was diagnosed with IC and I felt like my life was over it really does take over a big part of your life, [more..]
  • MY STORY - by CB - (Thu, May 08 2008)
    Reading all these stories is like I wrote them myself. I can relate to everything from pain to bion inplants. I have had it all done with nothing helping for more than a few months. [more..]
  • Don’t Give Up - by Dee - (Wed, May 07 2008)
    I am 58 yr old mother of two. I have had IC my entire life. Yes, it is frustrating, misunderstood, misdiagnosed and just plain painful. The best advice I can give anyone is too reduce use of refined sugar. [more..]
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