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This section is a place to share stories about Living with Interstitial Cystitis
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
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September 2009
- I have IC - by JK - (Tue, Sep 29 2009)
I was diagnosed 14 yrs ago with IC I had a total hysterectomy at 30 because Drs. thought that my pain was related to the “female” organs.
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- Success! - by gaylan - (Tue, Sep 08 2009)
I am a 65 year old female and have been referred to a doctor in Long Beach, Ca. for what was suspected to be an IC condition by a nutritionist friend named Juli. Juli had been a patient of a doctor at Cedar Sinai Hospital in LA and was treated for IC with a “bladder infusion” of a number of medications. The first 3 visits to my doctor consisted of testing for IC which was confirmed and a 4th visit for consultation which my husband also attended.
I was given the option of receiving 6 weekly “bladder infusions” using a small #3 catheter and small amount of Heprin in distilled water. I noticed relief within 30 minutes and after 6 treatments, my life has changed significantly. I am now pain free and able to revive the romance in our marriage. I also eat spicy foods and drink coffee without any discomfort. I’ll be going back for 2 additional infusions. What a miracle and to have come by the treatment in such a serendipitous way! What I have appreciated about my doctor and his staff most is the professionalism, fierce patient advocacy and genuine concern. The doctors are trainers and authors, the leaders in the medical industry.
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- Interstitial Cystitis - by Michelle - (Wed, Sep 02 2009)
Hi my name is Michelle I was involved in a car accident and three months later I became paralyzed from the waist down I was told I had Tranverse mylietis and after I started to recover I notice I had a problem with my bladder.
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