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Living with Interstitial Cystitis

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The Curse
by: MLAB on Mon, Jan 11 2010
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I am a 56 y/o woman. At the age of 44 I was diagnosed with breast cancer At 50, uterine cancer. And in between, fibromyalgia. I am sorry to say that it has gotten the best of me. I have been disabled since 2003. The most recent symptom is interstitial cytitis (IC). I became very ill last June with a UTI which actually panned out to be IC There is no cure, of course, but the pain in unbearable and constant. I cannot find a doctor that is knowledgeable about this condition, even the urologist handed me a pamphlet stating there is no cure and it might be controlled by diet (basically eating nothing acidic, no coffee, tea, chocolate and one fruit! Cantalope! I have a difficult time eating and meal planning just with the fibromyalgia and have now lost 20 pounds because of diet restriction. I am certain it even makes a difference because I have not been out of pain since June.

I am trying herbs and different things I have read about on the internet. Some days I don’t even get out of bed. The pain only subsides when I lie on my right side in bed after taking muscle relaxers. I am so depressed that I understand why people commit suicide when they suffer chronic pain. Any suggestions for the IC out there? What in God’s Name did I do to my bladder? I feel like I am being punished for some bad thing but I am unaware of what it is.


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January 2010

  • ic is so pianful - by casey - (Fri, Jan 15 2010)
    my name is casey, i’m 28 years old. i been having bladder problems for 10 years now. it seemd like over the pass ccouple of years the pain has gottn so bad that its hard for me to do anything. work or have a normal sex life. i have seen differnt drs and they all tell me the same theres nothen more we can do for you. [more..]
  • Low pH and IC - by Kris - (Wed, Jan 13 2010)
    I was recently diagnosed with IC (although I still have to get my cystoscopy). The IC Network recommended I eliminate acid foods. This led me to research effects of a low pH, which told me of the body’s innability to flush out all acids if one is highly acidic. [more..]
  • Ready to Move on - by Gina - (Tue, Jan 12 2010)
    My IC pain is so severe today i had to leave my job. i had to sacrifice the money not yet made. the money much needed for food, shelter, essentials because i was too painful to think. i felt i wasn’t fully conscious at my low paying job. my pain made me hate everything. My job, ,my body, my house, everything. [more..]
  • The Curse - by MLAB - (Mon, Jan 11 2010)
    I am a 56 y/o woman. At the age of 44 I was diagnosed with breast cancer At 50, uterine cancer. And in between, fibromyalgia. I am sorry to say that it has gotten the best of me. I have been disabled since 2003. The most recent symptom is interstitial cytitis (IC). I became very ill last June with a UTI which actually panned out to be IC. [more..]

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