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Living with Interstitial Cystitis

This section is a place to share stories about Living with Interstitial Cystitis

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Ready to Move on
by: Gina on Tue, Jan 12 2010
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My IC pain is so severe today i had to leave my job. i had to sacrifice the money not yet made. the money much needed for food, shelter, essentials because i was too painful to think. i felt i wasn’t fully conscious at my low paying job. my pain made me hate everything. My job, ,my body, my house, everything. i called my urologist he’s too busy to see me. i called an alternative health consultant, a health integrationist) she’s busy and can’t see me until 2 weeks from today and she is too busy to talk, and she doesn’t need to see me in person. (i can ‘consult’ with her over the phone. strange way to assess someone, especially when they are so concerned about ‘our holistic health’ she doesn’t own a cell phone and is actively against ’smart rids’. but yet, she doesn’t see you when she gives you health improvement advice.) i hate the fact that i don’t have the $150 that she wants before she can consult by phone. i hate that my health insurance will pay my urologist ridiculous amounts of cash and after almost 35 years, i still have pain. I hate berkeley. i wish i lived out in the country (where the health integrationist gets to live). I hate not being able to stay at home and write grants. instead i have an awful job. (a job that i have to ride my bike to because i have no car cuz my job doesn’t pay enough. by the time i get to work i am in pain from the bike seat rubbing and i tend to stand and pedal to prevent that and then i get to work and i am tired and hurting) Once at work i am running, lifting and pushing all day. in actuality i am racing to and from the bathroom peeing every 20 minutes more than anything. i hate my bladder. i am ready to move on. Fire my urologist research herbs, essences, diet, meditation and GET A GRANTWRITING JOB NOW!!!!!

can anyone relate?
Thanks for allowing my ventilation. Very Healing
Gina


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Comments
  1. Tue, Jan 12 2010
    Dear Gina, I do know how you feel. I know it may seem odd coming from a High School Senior, but I have gone through the same things. I have missed ...Read

January 2010

  • ic is so pianful - by casey - (Fri, Jan 15 2010)
    my name is casey, i’m 28 years old. i been having bladder problems for 10 years now. it seemd like over the pass ccouple of years the pain has gottn so bad that its hard for me to do anything. work or have a normal sex life. i have seen differnt drs and they all tell me the same theres nothen more we can do for you. [more..]
  • Low pH and IC - by Kris - (Wed, Jan 13 2010)
    I was recently diagnosed with IC (although I still have to get my cystoscopy). The IC Network recommended I eliminate acid foods. This led me to research effects of a low pH, which told me of the body’s innability to flush out all acids if one is highly acidic. [more..]
  • Ready to Move on - by Gina - (Tue, Jan 12 2010)
    My IC pain is so severe today i had to leave my job. i had to sacrifice the money not yet made. the money much needed for food, shelter, essentials because i was too painful to think. i felt i wasn’t fully conscious at my low paying job. my pain made me hate everything. My job, ,my body, my house, everything. [more..]
  • The Curse - by MLAB - (Mon, Jan 11 2010)
    I am a 56 y/o woman. At the age of 44 I was diagnosed with breast cancer At 50, uterine cancer. And in between, fibromyalgia. I am sorry to say that it has gotten the best of me. I have been disabled since 2003. The most recent symptom is interstitial cytitis (IC). I became very ill last June with a UTI which actually panned out to be IC [more..]

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