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Living with Migraine

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Severe Migraine Headaches
by: Emily on Mon, Jan 11 2010
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Im 16 years old and am suffering from severe migraine headaches.

They first came when I was 11, and the headaches came everyday, everynight, 24/7, for about a month. At this time I saw many doctors, and got a CAT scan and a MRI which both showed up clear. I also saw a neurologist who recommended topomax ( an anti-seizure drug proven to reduce and prevent migraines). My parents were unsure, and by the time they had come to a decicion, the headaches had gone away on their own.

For the next year I still got migraines however they came speraticly and could usually be treated with pain killers. When I was 13, the severe, 24/7 headaches returned for about 6 weeks. At this time I started going in and out of the ER, getting treatments of maxeran, torridol, and benedryl. These treatments worked minimally, and so my parents decided to take up the topimax the neurologist had reccommended.

The headaches dissapeared almost completly for the next year or so, but when I was 15, the headaches returned again. my parents phoned the neurologist, who said that often a second dose of topimax was needed if the headaches returned. This time, however, he doubled the dose. When I first started the topimax again, it was early summer and I was 16. It immiadatly had an effect. The headaches dissapeared, but in it’s place was depression. My parents noticed a change right away. I’m usually really happy and upbeat, but I can’t explain how I felt under the influence of that medicine. I soon developed an eating disorder, and I lost about 50 pounds over the course of three months and became extremly underweight.

My mom took me to see a doctor who said to get off the topimax. The day I took my last pill, the headaches returned. This was in october. I am still having the same 24/7 headaches today. It is majorly affecting my schoolwork because I can’t go to school, I can’t hangout with friends, I can’t do any of the sports I played, I can’t do music lessons, and I can’t stay on the student council I was on .

Today I am seeing an eating disorder clinic about once or twice a week, and I go to a pain managment clinic as well. I’m eating very well now, and have restored almost 20 pounds. I am on a new medicine, ammitryptilyne, but it doesnt seem to be working and its been about three months. I have been in the ER countless times, getting the same treatment which gives me about 12 hours of releif, if that. I was also in the hospital for about a week where they did a DHE treatment, a migraine treatment that works on 97% of people, but apparently not me. they also did another MRI which showed up clear. My current symptoms incude: severe head pain, dizzyness, vertigo ringing ears, extremely sore neck and spine, exhaustion, loss of vision, nausia, and occasional abdominal pain.

If theres anybody who has any idea of something that will help me, it would be greatly appreciated. i feell as though i have tried everything; all of the medinces a doctor can perscribe as well as all of the herbal treatments ( accupuncture, energy therapy, massage therapy, physio therapy, sleep therapy, ect)


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  1. Sun, Jan 17 2010
    I'm a 39 year old mother of 2. I have had headaches a far back as I can remember. I understand what you are going through. I also have a condition cal...Read

January 2010

  • MIGRAINES FOR LIFE…….. - by KAREN M - (Wed, Jan 27 2010)
    I started having migraines when i was 12 years old. My mom has them,my grandma has them, my great-grandma had them when she was still with us, and now my 14 year old son has started getting them too. [more..]
  • Noone takes me seriously - by TM - (Wed, Jan 27 2010)
    I’m 25 yo, I’m from a country in south america. I’ve been dealing with migrain since i was 22yo (at least). The nausea, the vertigo shaking hands, numbness, sensitive to light and noises are just a few sintoms that i have, [more..]
  • Daily Migraines - by Kristi - (Wed, Jan 20 2010)
    I am a 42 year old woman and have been having daily migraines with and without aura for the past 5 years. My “official” diagnosis is: Intractable Daily Migraine. I started looking for relief from my migraines by seeing my Family Practice Doctor, then a Neurologist, a Pain Specialist with a Neurology practice [more..]
  • D.O.A - by Wagner.PB - (Fri, Jan 15 2010)
    After heavily drinking on December 31 2007 it was a the greatest party eva but wait till January the 1st 2008 i thought it was a hangover i took a painkiller not knowing I am introducing myself to a life of ADDICTION to painkillers… [more..]
  • Severe Migraine Headaches - by Emily - (Mon, Jan 11 2010)
    Im 16 years old and am suffering from severe migraine headaches. They first came when I was 11, and the headaches came everyday, everynight, 24/7, for about a month. At this time I saw many doctors, and got a CAT scan and a MRI which both showed up clear. [more..]
  • 8 weeks and counting - by Karlie - (Thu, Jan 07 2010)
    I was researching migraines and came accross this website. I’m 22yo and have suffered frommigrains for about 3 years now. They were always one sided, caused nausea/vomitting, and lasted for a few days. [more..]

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