Living with MigraineThis section is a place to share stories about Living with Migraine Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download Severe Migraine Headaches Im 16 years old and am suffering from severe migraine headaches. They first came when I was 11, and the headaches came everyday, everynight, 24/7, for about a month. At this time I saw many doctors, and got a CAT scan and a MRI which both showed up clear. I also saw a neurologist who recommended topomax ( an anti-seizure drug proven to reduce and prevent migraines). My parents were unsure, and by the time they had come to a decicion, the headaches had gone away on their own. For the next year I still got migraines however they came speraticly and could usually be treated with pain killers. When I was 13, the severe, 24/7 headaches returned for about 6 weeks. At this time I started going in and out of the ER, getting treatments of maxeran, torridol, and benedryl. These treatments worked minimally, and so my parents decided to take up the topimax the neurologist had reccommended. The headaches dissapeared almost completly for the next year or so, but when I was 15, the headaches returned again. my parents phoned the neurologist, who said that often a second dose of topimax was needed if the headaches returned. This time, however, he doubled the dose. When I first started the topimax again, it was early summer and I was 16. It immiadatly had an effect. The headaches dissapeared, but in it’s place was depression. My parents noticed a change right away. I’m usually really happy and upbeat, but I can’t explain how I felt under the influence of that medicine. I soon developed an eating disorder, and I lost about 50 pounds over the course of three months and became extremly underweight. My mom took me to see a doctor who said to get off the topimax. The day I took my last pill, the headaches returned. This was in october. I am still having the same 24/7 headaches today. It is majorly affecting my schoolwork because I can’t go to school, I can’t hangout with friends, I can’t do any of the sports I played, I can’t do music lessons, and I can’t stay on the student council I was on . Today I am seeing an eating disorder clinic about once or twice a week, and I go to a pain managment clinic as well. I’m eating very well now, and have restored almost 20 pounds. I am on a new medicine, ammitryptilyne, but it doesnt seem to be working and its been about three months. I have been in the ER countless times, getting the same treatment which gives me about 12 hours of releif, if that. I was also in the hospital for about a week where they did a DHE treatment, a migraine treatment that works on 97% of people, but apparently not me. they also did another MRI which showed up clear. My current symptoms incude: severe head pain, dizzyness, vertigo ringing ears, extremely sore neck and spine, exhaustion, loss of vision, nausia, and occasional abdominal pain. If theres anybody who has any idea of something that will help me, it would be greatly appreciated. i feell as though i have tried everything; all of the medinces a doctor can perscribe as well as all of the herbal treatments ( accupuncture, energy therapy, massage therapy, physio therapy, sleep therapy, ect) Comments
January 2010
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